EB Info World ( Visit this link)
The mother of a child with a dreadful and devastating genetic skin disorder called epidermolysis bullosa eb recessive dystrophic hallopeau siemens offers not only advice and help in taking care of these babies and children but also has pages that show pictures of the children, memorials along with extensive information about the disorder. Information for a genetic skin disorder called Epidermolysis Bullosa. Mailing list, pictures, and help for new parents.
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