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Congenital (Subscribe)

Links

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Adult Congenital Heart Association

http://www.achaheart.org/

Information, resources and support for adults with congenital heart disease.

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Congenital Heart Disease Information and Resources

http://www.tchin.org

Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.

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CongenitalHeartDefects.com

http://www.congenitalheartdefects.com

Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.

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Grown Up Congenital Heart Patients Association (GUCH)

http://www.guch.demon.co.uk

Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.

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Heart Disease Online

http://www.heartdiseaseonline.com

A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.

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Hearts Of Hope

http://www.heartsofhope.iinet.net.au/

Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.

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HLHS Information

http://www.hlhsinfo.homestead.com

Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.

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International Society for Adult Congenital Cardiac Disease

http://www.isaccd.org/

The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.

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Joshua David's Heart

http://joshuasheart.homestead.com/

A personal story of a boy who had hypoplastic left heart syndrome, a very serious congenital heart disease. Read his story, see his photos, links, poems and guest book.

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MedicineNet

http://www.about-heartdisease.com

Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.

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