Batten (Subscribe)
Links
Batten Disease Family Associationhttp://www.bdfauk.freeserve.co.uk/ Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
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Batten Disease Support and Research AssociationBDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
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Nathan's BattleDetails a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
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The Luke and Rachel Batten FoundationCreated to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
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The Natey Foundationhttp://www.nateyfoundation.org/ Information for parents and families of Battens victims.
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