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Organizations (Subscribe)

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Boomer Esiason Foundation

http://www.esiason.org

A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.

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Cystic Fibrosis Foundation

http://www.cff.org/

Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.

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Cystic Fibrosis Nurses: the International Specialist Group

http://www.cfnurses.net

Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.

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Cystic Fibrosis Victoria Inc

http://www.cfv.org.au

Information about Cystic Fibrosis and the organisation, online chat room and message board.

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Cystic Fibrosis Victoria Inc

http://www.cysticfibrosisvic.org.au/

Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events

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Cystic Fibrosis Worldwide

http://www.iacfa.org/

International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.

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Dream Holidays Charity

http://www.cfdreamholidays.com/

The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life threatening disease. We arrange holidays and wishes for these children with no cost to the family.

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European Cystic Fibrosis Society

http://www.ecfsoc.org/

ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis

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European Cystic Fibrosis Thematic Network

http://www.cfnetwork.be/

Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.

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