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Prader-Willi Syndrome (Subscribe)

Links

Gretton Homes

http://www.gretton-homes.co.uk/

Information about the organization that offers residential care for people with Prader-Willi Syndrome.

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Prader-Willi Alliance of New York

http://www.prader-willi.org

Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.

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Prader-Willi Syndrome Association (USA)

http://www.pwsausa.org/

Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.

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Prader-Willi Syndrome Association of Victoria (Australia)

http://www.pws.asn.au

Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links.

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