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Ehlers-Danlos Syndrome (Subscribe)
Links
Coalition for Heritable Disorders of Connective TissueResearch organization for genetic connective tissue disorders.
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EDS TodayThe newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
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Ehlers Danlos Foundation of New ZealandSupport for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
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Ehlers-Danlos HopeA Syrian patient gives a personal plea for better medical support and research.
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Ehlers-Danlos National FoundationAmerican nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
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Ehlers-Danlos National Foundation - Michiana BranchSupport group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
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Ehlers-Danlos Syndrome Support GroupThis site offers extensive information for patients and doctors, plus links.
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Electronic Textbook of Hand SurgeryEaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
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Hypermobility Bloghttp://hypermobility.blogspot.com/ A sufferer writes about her daily experiences with hypermobile joints.
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Hypermobility Portalhttp://hypermobility.objectis.net/ Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
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