Web Directory by Internet-Web-Directory.com

Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.

A global information center providing links to Organizations around the world.

Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room, scheduled chats with professionals and links to its own Yahoo Support Group

Information about an e-mail mailing list. Also includes links to other online support groups.

Providing accurate and timely information about the disorder to patients, family members and physicians.

General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.

Research, testing and care for Marfan Syndrome and related connective tissue disorders, with a list of FAQs.