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Scleroderma (Subscribe)

Links

I Have Scleroderma

http://www.ihavescleroderma.com/

Web rings with personal stories of people affected by this disease and links to more information.

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Juvenile Scleroderma Network, Inc.

http://www.jsdn.org

Details about this organization who is working to provide educational programs about JSD, and to help children and their families to gain a better understanding of this disease.

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Scleroderma Clinical Trials Consortium

http://www.sctc-online.org

Information about this international organization which is dedicated to finding a better treatment for this disorder. Includes current studies and a newsletter.

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Scleroderma Lung Study

http://sclerodermalungstudy.medsch.ucla.edu/

A research study into the treatment of pulmonary alveolitis with cyclophosphamide seeking patient volunteers. Brief details of this US study for patients and doctors. (May 2000)

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Scleroderma Society

http://www.sclerodermasociety.co.uk

Offers support and information. Includes an introduction, news and a message board.

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SD World

http://www.sdworld.org/

E-mail list dedicated to scleroderma and other auto-immune problems.

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Surviving Scleroderma

http://www.sclerodermasupport.com/

An extensive resource for medical information, overview of disease and news from related organizations. A large service of support to visitors worldwide since 1996.

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The Scleroderma Foundation

http://www.scleroderma.org

National nonprofit health organization with 14,000 members, dedicated to a three-fold mission of support, education, and research to help fight this challenging autoimmune disease.

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The Scleroderma Research Foundation

http://www.srfcure.org/

Information about the organization, research, mailing list and resources.

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