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Anencephaly (Subscribe)

Links

Anencephaly Information

http://www.anencephalie-info.org/

Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, and Dutch]

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Anencephaly Net

http://www.anencephaly.net/

An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.

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Anencephaly Support Foundation

http://www.asfhelp.com/

Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.

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Faith Aminah Shabazz

http://faithaminah.tripod.com/

Faith was diagnosed with anencephaly while still in the womb. Her mother, Margo, chose to carry her to term. Faith was born in March of 2001, and lived until October, 2003.

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