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Leukodystrophy (Subscribe)

Links

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Adrenoleukodystrophy (ALD) Foundation

http://www.aldfoundation.org/

A non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease.

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Aicardi-Goutieres Syndrome

http://www.aicardi-goutieres.com

News, descriptions, contacts, and other information concerning this leukodystrophy.

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Bethanys Hope Foundation - For MLD Research

http://www.bethanyshope.com

A Canadian foundation funding research and serving families dealing with Metachromatic Leukodystrophy disease (MLD) and other leukodystrophies.

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Call Again Soon

http://www.joejohnson.net/

Directed at making life better for people affected by Leukodystrophy and those who know and love them.

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Canavan Foundation

http://www.canavanfoundation.org/

Not-for-profit foundation providing information about Canavan disease, prenatal screening, support, and research.

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Canavan Research Fund

http://www.canavan.org

The Canavan Research Fund is a not-for-profit organization dedicated to pioneering research that can treat and eventually cure Canavan and other genetic brain diseases.

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Canavan Research Illinois

http://www.canavanresearch.org

Information about this organization as well as about the disease, its research, fund raising and contact details.

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Dylan Samuel Freeman

http://www.dylanfreeman.20m.com

Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.

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Hunter's Hope Foundation

http://www.huntershope.org/

Formed in honor of infant son, Hunter, who was diagnosed with Krabbe disease (Globoid-Cell Leukodystrophy). Supports research on this and other leukodystrophies. Includes disease information, family registry, and other resources.

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MLD Foundation - Support for Families With Metachromatic Leukodystrophy

http://www.mldfoundation.org

Information, support, education and on-line networking for families throughout the world dealing with Metachromatic Leukodystrophy (MLD).

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