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Leukodystrophy (Subscribe)
Links
Adrenoleukodystrophy (ALD) FoundationA non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease.
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Aicardi-Goutieres Syndromehttp://www.aicardi-goutieres.com News, descriptions, contacts, and other information concerning this leukodystrophy.
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Bethanys Hope Foundation - For MLD ResearchA Canadian foundation funding research and serving families dealing with Metachromatic Leukodystrophy disease (MLD) and other leukodystrophies.
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Call Again SoonDirected at making life better for people affected by Leukodystrophy and those who know and love them.
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Canavan Foundationhttp://www.canavanfoundation.org/ Not-for-profit foundation providing information about Canavan disease, prenatal screening, support, and research.
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Canavan Research FundThe Canavan Research Fund is a not-for-profit organization dedicated to pioneering research that can treat and eventually cure Canavan and other genetic brain diseases.
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Canavan Research Illinoishttp://www.canavanresearch.org Information about this organization as well as about the disease, its research, fund raising and contact details.
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Dylan Samuel Freemanhttp://www.dylanfreeman.20m.com Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.
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Hunter's Hope FoundationFormed in honor of infant son, Hunter, who was diagnosed with Krabbe disease (Globoid-Cell Leukodystrophy). Supports research on this and other leukodystrophies. Includes disease information, family registry, and other resources.
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MLD Foundation - Support for Families With Metachromatic LeukodystrophyInformation, support, education and on-line networking for families throughout the world dealing with Metachromatic Leukodystrophy (MLD).
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