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Muscular Dystrophies (Subscribe)
Links
Becker Muscular Dystrophy Information Exchangehttp://www.beckermusculardystrophy.org Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
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Cell Therapy Research FoundationNot-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
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DMD OptionsLifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
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Dr. John R. Bach - The DMD/SMA/ALS DocThis site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
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DuchennesProvides links to medical and non-medical organizations and people with Duchennes problems.
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Facioscapulohumeral Muscular Dystrophy SocietyThe FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD).
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Irina's Cozy Corner and SMA PagePersonal web page of a Russian woman living with Spinal Muscular Atrophy. Includes information on travel, recipes and psychology. English, Russian and Italian versions.
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Justin's Locker Roomhttp://www.justinsokolowski.net A site by, for, and about Justin Sokolowski, a young man with Werdnig Hoffman's disease or a form of SMA. Lots of pictures of friends and family (including his cats), plus pictures of Justin with many pro and semi-pro athletes he's met. Guestbook. Virginia.
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Kevin M. Rudolph's Exciting SiteKevin, who has Duchenne Muscular Dystrophy, attends the University of Louisville and has a web business as well. Interests, hobbies and accomplishments plus lots of MD links. Kentucky.
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Living For Today, Preparing For TomorrowReference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
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