Cystinosis (Subscribe)
Links
Cystinosis Foundationhttp://www.cystinosisfoundation.org Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
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Cystinosis Research NetworkInformation about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
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