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Results 1 - 9 of 9 found in Rare Disorders:

Cherubs
CHERUBS is a non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia- visit our site and read some truly inspirational stories. A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
http://www.cherubs-cdh.org

Contact a Family
Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders. Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
http://www.cafamily.org.uk

Fibrosing Mediastinitis
The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum.
http://www.fibrosingmediastinitis.com

Human Growth Foundation
helping adults and parents of children with disorders of growth and growth hormone through research, education, support, and advocacy. Information about growth-related disorders through education, research, and advocacy. Member driven organization.
http://www.hgfound.org/

International Rare Disease Support Network
A community providing more than a 1000 different links to support groups for the people of all nations.
http://www.raredisorders.com

Lymphangiomatosis and Gorham's Vanishing Bone Disease
This page is made by a small family in Denmark, because our son has been diagnosed with the . Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
http://www.gorhams.dk

Mesothelioma Facts
Get the facts on mesothelioma types (benign, pleural, and pericardial), causes (asbestos), cancer diagnosis,.
http://mesothelioma-today.com

National Organization for Rare Disorders, Inc.
National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases. Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
http://www.rarediseases.org/

Tetrahydrobiopterin
Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
http://www.bh4.org

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