Skip to Content


Genetic Disorders (Subscribe)

Links

1 2 > >|

8th International Symposium on Mucopolysaccharide and Related Diseases

http://www.mps-kongress2004.de

The 8th International Symposium on MPS and Related Diseases will be held in Mainz, Germany. Traditionally, this symposium unites scientists, patients and their parents to share and discuss recent scientific results.

More Details Review It Rate It Bookmark It

Alliance of Genetic Support Groups

http://www.geneticalliance.org/

National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.

More Details Review It Rate It Bookmark It

Chromosome Help-Station

http://www.chromosomehelpstation.com/

Information on rare chromosomal disorders. Support and advice for families.

More Details Review It Rate It Bookmark It

Cornelia de Lange Syndrome (CdLS) Foundation Outreach

http://www.cdlsusa.org

Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

More Details Review It Rate It Bookmark It

Distal Trisomy 10q Families

http://trisomy10q.darylanderson.com

Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.

More Details Review It Rate It Bookmark It

Friedreichs's Ataxia Network

http://www.fan.asn.au

Support group providing some answers and up to date information on local support and worldwide research being conducted. Based in Brisbane.

More Details Review It Rate It Bookmark It

Ideas

http://IDIC15.ORG

A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).

More Details Review It Rate It Bookmark It

Maree-Medical Webshop, ordering incontinence products online

http://www.maree-medical.com

Maree-Medical sells all kinds of incontinence products online. Also diapers and plastic pants for bedwetting and nursing products.

More Details Review It Rate It Bookmark It

S.O.F.T.

http://www.soft.org.uk

A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.

More Details Review It Rate It Bookmark It

S.O.F.T.

http://www.trisomy.org/

Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.

More Details Review It Rate It Bookmark It

1 2 > >|