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Genetic Disorders (Subscribe)
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8th International Symposium on Mucopolysaccharide and Related Diseaseshttp://www.mps-kongress2004.de The 8th International Symposium on MPS and Related Diseases will be held in Mainz, Germany. Traditionally, this symposium unites scientists, patients and their parents to share and discuss recent scientific results.
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Alliance of Genetic Support Groupshttp://www.geneticalliance.org/ National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
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Chromosome Help-Stationhttp://www.chromosomehelpstation.com/ Information on rare chromosomal disorders. Support and advice for families.
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Cornelia de Lange Syndrome (CdLS) Foundation OutreachFamily support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
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Distal Trisomy 10q Familieshttp://trisomy10q.darylanderson.com Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.
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Friedreichs's Ataxia NetworkSupport group providing some answers and up to date information on local support and worldwide research being conducted. Based in Brisbane.
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IdeasA support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
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Maree-Medical Webshop, ordering incontinence products onlineMaree-Medical sells all kinds of incontinence products online. Also diapers and plastic pants for bedwetting and nursing products.
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S.O.F.T.A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
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S.O.F.T.Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
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